14 Comments

Adjusting Hope When The Options Are Bleak

hopeWhen the doctor confirmed mom’s hip was broken, she gave me two options. No surgery, or surgery, but we would have to remove the Do Not Resuscitate (DNR) order in place. Mom has been using a walker while assisted and in a wheelchair for months. She wasn’t interested in working to walk again so the surgery would be for pain management. My guideposts for mom’s care have been how does she feel and how does she look. She should feel as comfortable as possible and maintain as much of her personal style as her health allows.

Of course surgery seemed like the right course, but would they return mom with broken ribs as well after surgery because her heart stopped? As I sit in the E.R. waiting room, I review the hundreds of times my mom said “If I’m like my mother … don’t have my wits about me … am in a wheelchair … put a pillow over my head and take me out.” Yeah, she said this to me in varied forms for more than 20 years. I am glad my mom made sure I knew what she wanted. I’ve been trying to balance her wishes with the real choices we face. We put in the DNR as recommended by her community after she moved into assisted living with dad and was well into a moderate stage of her dementia.

Two years ago we faced many of these decisions for dad who had cancer and was in a moderate stage of Alzheimer’s. Thank you to Kathy S. for reminding me what a gift of love my dad offered by going first. I am so much better prepared to help my mom, but it doesn’t make the choices any easier.

We followed the recommendation for surgery, but learn after a day of tests that mom has both a lung and heart issue that would have to be treated most likely without success before we could again consider surgery. The medical, ortho, and geriatric doctor all recommend against surgery now. The significance of that to mom’s comfort is devastating.

We have moved my mom back to her community and she is in hospice care once again. Through this she has been frightened and tense. My mom never closed her eyes for more than a short blink through 4 courses of morphine the first day. She was so tense, movement was more painful than it should have been.

Now back in her community, we realize she may have had another stroke during the process. One side of her face is drooping and she is unable to really communicate with us now. I am blessed with a personal care assistant who has been with her for nearly a year that knows her well.

For now, I have to adjust my hope to keeping mom pain-free, and that she will join dad after a short visit with her children who all want the best for our mom. Hoped.

14 comments on “Adjusting Hope When The Options Are Bleak

  1. you are being so brave for you and your mom. love to both of you and to your family ❤

  2. I hope they manage the pain soon and your mum is able to relax and be comfortable. I’m thinking of you.

  3. I am so sorry you & your mom are going thru this. Prayers of peace for you both.

  4. I’m so sorry your mum is going through this and hope that they are able to keep her pain free. Thinking of you at this difficult time.

  5. My thoughts and prayers are with Kitty and you and all the family. Much love.
    Your cousin Carolyn in Littleton,CO.

  6. Oh, Kay. I am so sorry for what your mom and you are experiencing. You are in my prayers.

  7. Thank you so much for all your postings Kay. The day to day decisions to honor what your Mom wants vs different realities can take such a toll, on everyone. Your strength is inspiring, so please know that through the years of your challenging journey, you are helping many of us just beginning ours. Hold on tight. Peace..

  8. I’m so sorry to hear about these latest complications.Watching a loved one in pain is the worst. I hope her pain can be managed and all of you get some quality time together.

  9. I recently wrote about a similar topic, would really appreciate feedback!

    http://themillennialdigest.com/2015/12/17/dealing-with-grandma/

    • Hi – Thank you for sharing. I am sharing this with readers tomorrow. I realized you want to remain anonymous and your identity is safe with me! I hope mom, dad and grandmom are doing well (or well as can be). Keep writing.

  10. Oh gosh, I’m so sorry. What I hated with mom’s situation were all the decisions that felt like they were life and death, because they were. And it’s all hard, and it hurts our heart. I wish for you ome quality time left with your mom…

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